Richtlijn: Hartafwijkingen (2017)

Referenties

Casey FA, Stewart M, McCusker CG, Morrison ML, Molloy B, Doherty N, Craig BG, Sands AJ, Rooney N, Mulholland HC. Examination of the physical and psychosocial determinants of health behaviour in 4-5-year-old children with congenital cardiac disease. Cardiol Young 2010;20:532-7.

Daliento L , Mapelli D, Russo G, Scarso P, Limongi F, Iannizzi P, Melendugno A, Mazzotti E, Volpe B. Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart 2005;91:213–8.

Dua JS, Cooper AR, Fox KR, Graham Stuart A. Physical activity levels in adults with congenital heart disease. Eur J Cardiovasc Prev Rehabil 2007;14:287–93.

Duppen N, Takken T, Hopman MT, ten Harkel AD, Dulfer K, Utens EM, Helbing WA. Systematic review of the effects of physical exercise training programmes in children and young adults with congenital heart disease. Int J Cardiol 2013;168:1779-87.

Fekkes M, Kamphuis RP, Ottenkamp J, Verrips E, Vogels T, Kamphuis M, Verloove-Vanhorick SP. Health-related quality of life in young adults with minor congenital heart disease. Psychol Health 2001;16:239-50.

Harinck E, Hutter PA, Hoorntje TM, Simons M, Benatar AA, Fischer JC, de Bruijn D, Meijboom EJ. Air travel and adults with cyanotic congenital heart disease. Circulation 1996;93:272-6.

Johnson B. Behaviour problems in children with congenital heart disease. BMH Medical Journal 2015;2:14-19.

Jordan B, Franich-Ray C, Albert N, Anderson V, Northam E, Cochrane A, Menahem S. Early mother-infant relationships after cardiac surgery in infancy. Arch Dis Child. 2014;99:641-5.

Kamphuis M, Ottenkamp J, Vliegen HW, Vogels T, Zwinderman KH, Kamphuis RP, Verloove-Vanhorick SP. Health-related quality of life and health status in adult survivors with previously operated complex congenital heart disease.  Heart 2002;87:356-62 (a).

Kamphuis M, Vogels T, Ottenkamp J, Van Der Wall EE, Verloove-Vanhorick SP, Vliegen HW. Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med 2002;156:1143-8 (b).

Karsdorp PA, Everaerd W, Kindt M, Mulder BJ. Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. J Pediatr Psychol 2007;32:527-41.

Kenny D, Stuart AG. Long-term outcome of the child with congenital heart disease. Paediatrics and Child Health 2009:19:37-42.

Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW, Mussatto KA, Uzark K, Goldberg CS, Johnson WH Jr, Li J, Smith SE, Bellinger DC, Mahle WT; American Heart Association Congenital Heart Defects Committee, Council on Cardiovascular Disease in the Young, Council on Cardiovascular Nursing, and Stroke Council. Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation 2012;126:1143-72.

Miatton M, De Wolf D, François K, Thiery E, Vingerhoets G. Neurocognitive consequences of surgically corrected congenital heart defects: A review. Neuropsychol Rev 2006;16:65-85.

Miatton M, De Wolf D, François K, Thiery E, Vingerhoets G. Intellectual, neuropsychological, and behavioral functioning in children with tetralogy of Fallot. J Thorac Cardiovasc Surg 2007;133:449-55.

Moons P, Van Deyk K, De Bleser L, Marquet K, Raes E, De Geest S, Budts W. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehab 2006;13:407–13.

Opić P, Roos-Hesselink JW, Cuypers JA, Witsenburg M, van den Bosch A, van Domburg RT, Bogers AJ, Utens EM. Sexual functioning is impaired in adults with congenital heart disease. Int J Cardiol 2013;168:3872-7.

Opić P, Roos-Hesselink JW, Cuypers JA, Witsenburg M, van den Bosch A, van Domburg RT, Bogers AJ, Utens EM. Psychosocial functioning of adults with congenital heart disease: outcomes of a 30-43 year longitudinal follow-up. Clin Res Cardiol 2015;104:388-400.

Saliba Z, Butera G, Bonnet D, Bonhoeffer P, Villain E, Kachaner J, Sidi D, Iserin L. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 2001;86:69–73.

Simko LC. Quality of life of adults with congenital heart disease. Dissertation Abstracts International: Section B: The Sciences and Engineering 2000; 61(3-B):1329 (abstract).

Spijkerboer AW, Utens EM, De Koning WB, Bogers AJ, Helbing WA, Verhulst FC. Health-related Quality of Life in children and adolescents after invasive treatment for congenital heart disease. Qual Life Res 2006;15:663-73.

Spijkerboer AW, Utens EM, Bogers AJ, Helbing WA, Verhulst FC. A historical comparison of long-term behavioral and emotional outcomes in children and adolescents after invasive treatment for congenital heart disease.  J Pediatr Surg 2008;43:534-9 (a).

Spijkerboer AW, Utens EM, Bogers AJ, Verhulst FC, Helbing WA. Long-term behavioural and emotional problems in four cardiac diagnostic groups of children and adolescents after invasive treatment for congenital heart disease. Int J Cardiol 2008;125:66-73 (b).

Takken T, Giardini A, Reybrouck T, Gewillig M, Hövels-Gürich HH, Longmuir PE, McCrindle BW, Paridon SM, Hager A. Recommendations for physical activity, recreation sport, and exercise training in paediatric patients with congenital heart disease: a report from the Exercise, Basic & Translational Research Section of the European Association of Cardiovascular Prevention and Rehabilitation, the European Congenital Heart and Lung Exercise Group, and the Association for European Paediatric Cardiology. Eur J Prev Cardiol 2012;19:1034-65.

Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 2001;22:128-32.

Utens EMWJ, van Melle JP. Psychosociale problematiek. In: Aangeboren hartafwijkingen bij volwassenen. Mulder BJM, Pieper PG, Meijboom FJ, Hamer JPM (Eds). Bohn Stafleu van Loghem, 2013.

Van Rijen EH, Utens EM, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR, Bogers AJ, Verhulst FC. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up.  Eur Heart J 2003;24:673-83.

Van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR, Bogers AJ, Verhulst FC. Current subjective state of health, and longitudinal psychological wellbeing over a period of 10 years, in a cohort of adults with congenital cardiac disease. Cardiol Young 2005;15:168–75.

Van Rijen EHM, Utens EMWJ. Psychological aspects of congenital heart disease in children. In: Congenital heart defects, from origin to treatment. Wyszynski DF, Correa-Villasenor A, Graham TP (Eds). Oxford University Press 2010.

Wald RM, Sermer M, Colman JM. Pregnancy and contraception in young women with congenital heart disease: General considerations. Paediatr Child Health 2011;16:e25-9.

Zomer AC, Vaartjes I, Uiterwaal CS, van der Velde ET, Sieswerda GJ, Wajon EM, Plomp K, van Bergen PF, Verheugt CL, Krivka E, de Vries CJ, Lok DJ, Grobbee DE, Mulder BJ. Social burden and lifestyle in adults with congenital heart disease. Am J Cardiol 2012;109:1657-63.


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