JGZ-richtlijn Hartafwijkingen

Introductie, materialen & referenties

1 Inleiding Ga naar pagina over 1 Inleiding

1.1 Doel & doelgroep

1.2 Afbakening

1.3 Leeswijzer

2 Definities en achtergrondinformatie Ga naar pagina over 2 Definities en achtergrondinformatie

2.1 Werking van het hart

2.2 Aangeboren hartafwijkingen

2.2.1 Risicogroepen

2.2.2 Beschrijving meest voorkomende aangeboren hartafwijkingen

2.3 Gevolgen voor het dagelijks leven

2.3.1 De emotionele en gedragsmatige ontwikkeling

2.3.2 Kwaliteit van leven

2.3.3 Onderwijs

2.3.4 Vrije tijd

2.3.5 Overige

3 Signaleren, diagnostiek en verwijzen Ga naar pagina over 3 Signaleren, diagnostiek en verwijzen

3.1 Onderzoeksmomenten

3.2 Anamnese en lichamelijk onderzoek

3.3 Controle en verwijzing

3.4 Coarctatio aortae

3.5 Aritmieën

3.6 Verworven hartafwijkingen

3.7 Signaleren van aritmieën en verworven hartafwijkingen in de JGZ

3.8 Risico op hart- en vaatziekten

3.8.1 Ten aanzien van het bepalen van de kans op hart- en vaatziekten

3.8.2 Ten aanzien van bloeddrukmeting binnen de JGZ

4 Preventie Ga naar pagina over 4 Preventie

5 Behandeling en begeleiding Ga naar pagina over 5 Behandeling en begeleiding

5.1 Endocarditisprofylaxe en vaccinaties bij kinderen met een (aangeboren) hartafwijking

5.2 Sociaal-medische begeleiding

6 Samenwerken Ga naar pagina over 6 Samenwerken

7 Totstandkoming Ga naar pagina over 7 Totstandkoming

7.1 Werkwijze

7.2 Cliëntenparticipatie

8 Verantwoording Ga naar pagina over 8 Verantwoording

9 Bijlagen Ga naar pagina over 9 Bijlagen

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Over JGZ-richtlijn Hartafwijkingen (2017)

Deze richtlijn bestaat uit delen van de richtlijn Vroegtijdige opsporing van aangeboren hartafwijkingen uit 2005. Er wordt ingegaan op de werking van het hart, voorlichting, (vroeg)signalering, begeleiding en verwijzing voor medische en psychosociale problemen. Specifieke onderwerpen die in de richtlijn worden behandeld zijn: aangeboren en verworven hartafwijkingen, hartritmestoornissen en hart- en vaatziekten.

Training voor professionals

Informatie voor ouders

Hartstichting, voor filmpjes en brochures over het hart en hartaandoeningen
Patiëntvereniging Aangeboren Hartafwijkingen (PAH)
Stichting Hartekind zet zich in voor kinderen met een (aangeboren) hartafwijking
Groeigids.nl

Bijlage 1 van deze richtlijn is een uitgebreid overzicht van boeken en websites rondom hartafwijkingen.

Colofon

Richtlijnontwikkelaar: TNO
Auteurs: J. Deurloo, N. Heerdink
Autorisatie: Inhoudelijk door de AJN, V&VN vakgroep jeugd en NVDA. Randvoorwaardelijk door GGD GHOR Nederland en ActiZ

Deze richtlijn is gefinancierd door ZonMw

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